My Bipolar Spouse

July 2016

Grandiose is a newly vivid word in my world. In a past life, when the words ‘Bipolar disorder’ were just a whisper in a passing breeze, the word Grandiose was beautiful. Now it is a symptom, a warning and a heavy realization.

                When one spouse feels as though they are grandiose, the other spouse shrinks. We occupy the same space, but we do not share it equally. When one of us is grandiose, the other has less space, and the result is me, the hollow spouse, struggling for room to breathe. 

                When my husband set his sights on me he was relentless in his pursuit. He immediately honed in on my children, lavishing them with attention and gifts. My life as a single mom revolved around them, and he made it his mission to join in on our little family activities.

In 4 days he was convinced that we were meant to be married. He felt that God himself had ordained it to be so.  In 4 months we were married.

I saw things that scared me, I dismissed them. I saw his temper, his drinking, and his history of partying (logged nicely on Facebook for years)- I justified those too, telling myself that we all have a past. His promises were wildly enticing. His image of what the future would be like was easy to fall in love with.

As we began to plan our wedding he dove in head first into decorating the chapel, planning outfits in minute detail, and outlining the flow and structure. His every waking moment, went to frantic wedding projects. A few times the tension erupted from these obsessive projects and again I justified the outbursts.

When we met he told me he didn’t drink, he had given it up. On our honeymoon he started, and the drinking continued. It continued through our honeymoon despite my pleading, it continued past explosive fights that escalated to profanity fill shouting, past threats of divorce and separation. It continued after a wreck and subsequent DUI charge. The first year of our marriage was spent with him living inside a beer bottle, while I shouted at him from the outside. We lived our first year together at war with each other.

The second year of our marriage revolved around 2 words; Bipolar Disorder. Looking back, I see the first year through new eyes. His behavior remains unjustified, and our marriage no less charred, but now it looks symptomatic and obvious.

The second year gained a psychiatrist, a prescription for lithium, and a lot of waiting, hoping, failing, frustration and note taking. My husband is still grandiose. While he may admire a small handful of men in his life, I cannot think of a single person that he would not consider beneath him in some way. His ideas are better, his talents are better, his inventions are better, his time is more valuable, and he deserves adoration, affection and attention. I struggle for room to breathe.

I read about coping with a bipolar spouse often. Sometimes I come across others whose words perfectly echo my thoughts. Other times I cringe at the advice given. Blame is hard to avoid, in heart, mind and fight. Respect is difficult to feel after so many moments of disgust and anger boil over into resentment. Prevention is nearly impossible when the only one capable of spotting an upcoming episode is the one person the Bipolar spouse WILL NOT listen to.

So many days I feel like a target. On a good day, in a civil conversation, I may be asked to help by pointing out manic behaviors when I notice them. On the day that I notice them, I become the enemy. I’m asked to help with financial planning after the mania has helped to create a financial panic, until my plan involves the limitation of his spending, then I am the enemy. I’m asked to change my moods, my tones, my level of patience, and despite my best efforts, I’m stuck behind enemy lines.

I feel hopeless. It feels like being slowly drowned. I struggle with staying in this life, and this marriage. I am losing hope. I am not the one getting treatment, or taking medication. I am not the one diagnosed, thereby making me insignificant. I am not grandiose, I am struggling for room to breathe.

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Cyclone

Jan 2017

I am the hard shelled one in our marriage. I do not break often or easily, I don’t fall apart and I don’t sulk for long, no matter the situation. I’ve had to be strong my entire adult life and it has served me well.

My husband is soft. He is emotional, intense, needy and insecure. He needs to hear often those words that cover a multitude of sin. He needs to touch often even when it is mindless and his attention is on a screen, his hands need to feel me nearby. When this insatiable need for affection is not quenched, he begins the descent into depression, self-loathing, and despair.

He asks about my day, my location, my activities, my plans every time I am not in view. He needs my texts to show when I read his, my location to be available at all times and my reassurance that I am always on my way home. Lest I should vanish into thin air.

Then there are times when his ego inflates to God like stature and he cannot be held down by earthly limitations. No job is too big, no expense is too outrageous, and no one else compares to his mighty and anointed hands. In these times I am not enough for him. I do not bow down to his greatness with enough gratitude, enough awe, or enough fear.

When he is inflated to Godlike proportions I am never supportive enough to satisfy his need for admiration. When he is deflated to a weak and fragile skeleton I am not soft enough for him to fall into.

Both sides of my husband destroy me, poke cancerous holes in our marriage and chip away at the foundation of our life together. In both polarities, I am the wrong wife. Too strong, too able, too willful and too real. Not soft, not understanding, not supportive and not loving.

I live in the middle of this cyclone. If I move left or right I know I will be inhaled into the raging chaos that is greedily devouring everything it can. If I stay still, steady and strong I can stay in my place, I can keep my footing but I will always stand here alone. I will always feel the wind pulling at my clothes and hair, always changing direction and waiting for me to slip in either direction so that it can finally swallow me.

Fraud

I hadn’t realized there was a crack in my armor until I felt the familiar sting. The words “other women” pierced through the weakened metal and through my chest. I felt the pulse of devastation radiate upward toward my throat and down into the clenching muscles of my stomach. Red hot, it spread like a brush fire until my eyes burned with tears. He was a liar, he was a womanizer and I was not as brave or as indestructible as I had believed myself to be.  I am also a liar. I am also hoarding secrets. His indiscretions barrel through my core like an angry locomotive, and in its dusty wake, my own guilt is wiped clean.

 

via Daily Prompt: Fraud

Proud of the Pieces

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               Half of me was stitched together by the open mountain air, the flowing and fearless ocean, and the free spirit of adventure. Half of my heart will always beat to the rhythm of cultures colliding.  My thoughts will always meander along winding paths between the polar points of norms. A rush of adrenaline, a thrill of adventure, a change of view; these traits engraved on my spirit, an ever hungry search. California raised me, and loves me still.

OLYMPUS DIGITAL CAMERAThe smell of rain soothes the troubles of my mind. My eyes caress the green lush land, the stunning beauty of the bayous, and the gentility of grazing cattle. Food that promises to satisfy flesh, warms and feeds the soul. The midnight stars shine like visible Gods in the sky, as peace and tranquility sing their polite song. My Louisiana, where half of my existence and all of my plans, serenely dwell.

Half of me born of the former. Half of me formed by the later. All of me proud of the pieces.

Inhale, Let Go, Keep Going

The size of the world will grow and shrink according to the eyes that view it. Day after day the weight of the world bears down onto your shoulders, and just holding it up takes everything you’re made of. A good night’s rest does little to revive you. Your spirit begins to crack and you begin to wonder exactly what, if anything, you’re made of. You feel like the sand along the shoreline, beaten endlessly by a careless and brutal ocean. On the worst days the world is closing in, the air is thick and suffocation feels inevitable. You wait for the heaviness to steal your last breath, you exhale, your lungs deflate, and you wait. How many times did you pray for a miracle? Inhale. There it is, your miracle. The chance to breathe another breath, the chance to keep going, is your miracle. While you’re spending your energy angry at a God who would allow you to keep going in spite of your suffering, this miracle is denied to many who desperately beg for it.

Though the world may feel closed in on you, the good news is you aren’t alone in it. How self-absorbed we become in thinking our suffering is so great. We hurt, we cry, we struggle but we get to keep going. And despite the turmoil, the weight of the world doesn’t crush you. The pieces of you that feel broken are in reality, only momentarily dark. That light that once was bright has lost its power, but it remains in place, waiting.

One day the world will open wide again. The air will become thin and fragrant and the birds will once again sing a glorious morning song into your ears. One day the light inside you will be fed again and its warmth will radiate from your eyes. One day the sound of your breathing will be a soothing lullaby as you drift warmly into peaceful slumber. Music will be for you, sunshine will warm your face, your stride will be a dance, and your smile will return. One day.

Inhale, let go, and keep going.

Musical Chairs

I told him he was handsome and he told me he wasn’t sure. I told him he was special and he shook his head. His eyes downcast, he thought about my words. I saw the way his eyes rushed around the room, moving like sparks of lightening but seeing nothing. He was deep inside his mind, with my words and his own. Inside his mind our words danced face to face. He said nothing. His eyes returned to me, seeing my face and he shrugged. In his mind the words I gave him were still roaming, in search of a place to sit.  When I told him he was very smart, he gave me a list of things he had yet to learn. My words again went into the warehouse of his mind, and found no place to rest.  Inside his mind, a game of musical chairs played out.  Imagine there are 5 chairs in a small circle within the mind of my seven year old son. Each chair has been claimed. Then, I add a new player. My new player is an expression of positive affirmation. The new player enters the game, and has no seat. The game begins. The music starts and the others get up and circle the seats. The other players are not like the new player. The other players are doubt, fear, worry, disappointment and sadness. When the music stops, my son has to decide who gets a seat, and who does not fit. Time and time again, my words of affirmation are left without a seat, and the game is over.  This is what happens in the mind of my child with ADHD. Meanwhile within my chest, my heart breaks again and again for him.  They called him defiant, disruptive, unruly, stubborn, and bad and those words each found a seat within him. Ask him what he thinks of himself and those words will parade out of his mouth in a declaration of self-destruction and shame. He did not do this to himself.  His mind is a wide open field of discovery, endlessly in search of something new. He is amazing. Facts and numbers enter the stream of his thoughts and return in perfect order. Questions pour out of him and answers absorb back in. He is happy when he is learning, and he is perfect. One day the game of musical chairs will begin to change. One day when the world opens up to allow him the freedom to be himself, he will let go of those hopeless words and mine will sit in their place. He is good, he is smart, he is handsome and he is loved.  ADHD is a diagnosis, not a curse. ADHD is a condition not a limitation. Encourage your children, help them to replace the negativity in their minds, with the love and affirmation they truly deserve. Be the voice that speaks louder than the doubt. Be the smile that covers them. The music is playing, change the game.

Man-Cold Mountain

Take a walk with me to a place every wife knows. A place that gets darker the higher you climb and where sunlight seems to wither and die away with each difficult step. A place that tests the limits of your strength and your sanity. Chances are, you’ve been here before.You’ll need to pack well, tread lightly, and pray hard. Walk with me to a place called Man-Cold Mountain.

Woe to the wife making this journey today. Our thoughts, prayers, and hopes go with you, bidding you safe passage.

   

Most journeys begin with a few easy steps, a strong commitment and at least a sprinkle of excitement. Man-Cold Mountain is not one of those journeys. The journey across Man-Cold Mountain begins with a sudden drop from the grace of solid ground, into a graying and murky swamp. I weep for the wife who is making her very first trek into, and hopefully through, Man-Cold Mountain. We all weep for you, from a distance.

The CLINGER:

  
The murky swamp sucks at your feet as you step forward. It begs you to stay in one place, immobile and attentive. Soon moss covered roots from beneath the surface begin inching up toward you. They don’t immediately appear threatening as they beg to wrap themselves around your torso. You hear a voice call to you, a needy desperate voice saying “hug me, hold me, just stay here with me”, and the panic sets in. RUN! RUN before it’s too late!  

THE COUGH SHARE: 

Climbing out of the clinging desperate waters, feeling triumphant and hopeful, you continue. The ground that had become mush, quickly hardens under your steps and before you have time to enjoy your victorious stride, the next leg of your journey erupts, knocking into your ears with impatient force. The sounds around you explode! Thunder joins wind and rain pelting your face and clothes. A moment later you realize with horror that the wetness slapping your senses into high alert resembles spears more than rain. Spears of acidic bacteria begin a vicious assault. Infected arrows fight to penetrate your armor. Your best defense is to escape. No weapon has yet been successful in defending against this spray of violence. Everything around you that is touched by the arrow quickly wilts, rots and dies.

  Some of you will make it out of the acid rain unscathed, others will fall to the arrows. I wish I could tell you that your demise was noble, that your efforts were not in vain, but alas, I cannot. Man-Cold Mountain feels no remorse. However, if you did survive, you’ll have mere minutes to compose yourself before the journey turns again.

THE SUDDEN CURE:

  
Run if you can find the strength, crawl if you have nothing left, but do not stop here under any circumstance. There is calm here, but it is a lie. In the peaceful quiet of this slightly brightening track lurks an enemy. He is a mirage. He plays a beautiful song, sweet and soft and your heart will yearn to follow the sound. If you do, you will find that the music leads you blindly back to the land of spears and thunder. But, if you hold onto your resolve, push past the enchanting song and walk on, the end of Man-Cold Mountain will soon be found.

Bloodied, exhausted and clinging to sanity, you will find the glorious end of Man-Cold Mountain’s dreadful path. You are a survivor. Take a moment to celebrate your victory, and get ready. The path through Man-Cold Mountain will soon be upon you again.  

Deciding crazy 

In a family overrun with mental illness, I find myself questioning my own sanity. On some level I think that my emotions are usually fairly normal, or at least within a normal-ish range. Then that makes me wonder, do crazy people know they are crazy, or is my adamant denial a sign of mental illness that all the mentally ill have?
 {Disclaimer:

I say “crazy” because in my opinion it’s become such a general term. No one in my family has ever been medically diagnosed. In fact, I am fairly confident that very few (if any) have ever sought out medical help, advice, treatment or evaluation for mental health concerns. That just isn’t the way our clan handles things. So please understand, that the word crazy is my word of choice simply because I have few better options of what to call this family epidemic. The word crazy also gives me a bit of comedy relief in what is otherwise a sad and serious affliction}  
I think about my paternal bloodline, which in my case is like liquid crazy pumping through my veins. I’ve always considered myself immune. My confidence, or what used to feel like confidence, comes from the fact that I’m a rare girl, born amidst a long line of men. Maybe this was a theory I created as an insulator; a pretend force-field from the genetic attack that seemed to war with so many of the men in my family. In my usual way, I decide to analyze and investigate myself, my assumptions and my family tree with all its various nuts.

The hierarchy of insanity, as told by me

(To be fair, the pyramid visual is short lived)
 On top of the pyramid sitting side by side, are my two uncles. The first to end his own life was the third born child of my grandparents. Uncle Kriss, was 26 years old when he died, on December 7, 1987. I was 3 years old. I think about him today, and I find myself comparing what I know of him, to my own life. What was I doing at 26 years old? I had been a single mother of 3 for a couple of years by then, somehow managing to hold a steady job, tend to my very young children and overall keep things above water. For a while I had a wonderful relationship, an unwavering determination to succeed and overcome, and something resembling a plan. Then, I had none of that. In some way the bottom fell out, or rather, I knocked it out and jumped down a mental rabbit hole. I started exploring my own wild side for the first time, exercising my right to unchain myself, my morals, and the limits I felt hindered by. First, I demolished my relationship, then I broke rules, and tested the boundaries that had been unbent before that point. I stayed out all hours when my children were gone, drank, smoked, even drove intoxicated a few times. Could that be considered in its own way a state of mental fracture? Maybe. As I sit here today thinking back I have to shake off the disgust I feel, and at least acknowledge that it was certainly risky behavior, but was I crazy? How unusual is it for a young woman to break out of a cage-like marriage and go on what I now consider “an adventure in self-discovery”? It’s probably mundanely common. So, I resolve to let that go. I wasn’t crazy at 26 years old. Stupid, young and impulsive yes, but crazy? No. 

Sitting atop that pyramid next to his baby brother is the first born child of my grandparents. Uncle Keith took his own life on March 11, 2006, at 47 years old. This uncle I knew much better than Uncle Kriss. Uncle Keith was competitive, excitable, generous and loud! Our family is in the tire business. Every male for the past 3 generations has had a role in this business. Some just for summer jobs, others with their own branches. I remember visiting Uncle Keith at one of the tire shops. The men on this side of my family are always filthy, covered in layers of smeared black tire gunk. I remember the smell of rubber, grease, and stale cigarettes as being a staple of my childhood. Uncle Keith would pick me up with huge hands that he’d wiped with an already dirty rag, and sit me on the (also dirty) counter inside the air conditioned shop. He’d pay for a Yoohoo from a vending machine, shake it up and hand it to me to drink. His booming voice overtook his surroundings in any setting, and he had an enormous smile that took over his whole face. He had the rounded head of an autumn pumpkin, and brown hair that I’m pretty sure he brushed often but it still seemed to stick up in a rebellious sort of way. No one could boil crawfish better than he could, of course, that was his own declaration, not actually a proven fact, though you could never have convinced him of that. Several times I remember him folding a One hundred dollar bill and tucking it semi-secretly into my back pocket, before I left the shop. This also happened at Christmas time and for my birthday. Other times he was outright about it and proudly gave me the same bills to give to my brothers as well. Thinking about him now I have to say that it was as if he dressed himself in confidence, added a spritz of arrogance and topped it off with the hat of know-it-all-ness. All this, combined with his big heart and lively personality made him unforgettable, fun and amusing. In his defense, and to the detriment of the rest of us, we all seem to wake up and cloak ourselves in some level of conceit, yes, even the most humble of our clan has a head bigger than most door frames are equipped to handle.  

So, I ask myself; how is it that the uncle I remember slipped into a cocoon of his own mind, imprisoned himself in despair and finally, came to the conclusion that his life was over, at 47? I remember the years before this, and a few things come to mind. At the forefront of my memory are the coins. Coins replaced the hundred dollar bills at Christmas. One Christmas at least, I remember a tiny gold-plated dime that had been shrunken to a ridiculously small size, even for a dime, and put into a small square plastic case. I must have been in my late teens that year and it’s no shock that a shrunken gold dime was a less than exciting gift to receive from the uncle famous for hundred dollar bills. Yes, I realize at this point that I sound like a very stereotypical teenage girl who wanted mall spending cash for Christmas, and you’d likely be right, that’s probably exactly who I was.

 The gift itself was strange but the icing on the shrunken cake was his overzealous explanation of the importance of the coin. It wasn’t unusual for him to be animated, but I think this moment stands out because of the object of his ranting. A coin, just seemed so insignificant. Sure people collect coins, I like to call them hoarders, but for the sake of argument let’s assume these coins, specifically the shrunken gold dime, was potentially worth money one day. I could take it a step farther and assume that a coin like this would be worth an outright fortune one day, maybe then I could relate to his enthusiasm, but that seems a stretch, even for me. The logic that seems clear to me, wasn’t clear to him. To him, this coin was something fantastic worth investing time, money and interest in. I learned years later that he had collected many coins and was equally as enthralled with each one. How can I avoid the word crazy here? Another bit of information I learned following his death, came from his own father, my grandfather. Don (or Popa as I call him) told me that Uncle Keith had developed an obsession with errors in printed works like the newspaper and classified ads. The way I remember it, I got the impression, whether directly spoken or indirectly suggested, that he (Keith) had taken a stand against typos, incorrect information and/or ads he found issue with. He made angry phone calls to complete strangers to chastise them. He rebuked people for information he decided was wrong. Again I ask myself, do I see myself here? I think I’m afraid to dive into myself for the answer. I am a self- proclaimed grammar nazi, but in my defense, strangers have never heard me correcting them, no, I do that loudly in my head. 
I am not yet 47, so I can’t compare the 47 year old Keith, to the 47 year old me, not yet anyway.

So now we’ve reached the part of all this where I tell you why I’m writing about this to begin with. 

Yesterday. (Yesterday was September 28, 2015).

Yesterday I drove into the cemetery where my maternal grandmother is buried. I parked my car a few rows from her grave and began to cry.  

(For the record, she wasn’t crazy, at least not that I’m aware of, but at this point who knows.) 

I cried for many reasons. One of which was pent up emotion I had spent too much time and energy shoving back down each time it attempted to breach the surface. I cried because at 31 years old, with what must look like a picturesque life surrounding me, I felt lost, angry, empty and at the same time full of crazy. I sat there hating the sound of my own sobs, wishing I didn’t have to hear it, meanwhile I couldn’t stop it from getting louder. After a few minutes I got out of my car, walked to her grave and sat on it. I cried more. I talked to her, which I think is a pretty normal thing to do in a cemetery. But even in a moment of apparent normalcy, I felt crazy. I was talking to a slab of stone that represented my grandmother (as if that in itself isn’t purely insane) but I was also talking to my two other grandmothers who were (for lack of a more literal phrase) nowhere near there. I talked in circles for a few minutes almost scolding them for not being here for this part of my life, and I kept cycling back to the same half statement half question; “I think I’m crazy, am I crazy”? I asked a dozen questions, without expecting any answers. Why did I retreat to a field of the dead, to ask myself if I was crazy? At one point I noticed my right foot and sandal were partially covered in little red ants, and as I shook them off I realized that none had bothered to bite me. I had the thought that even the ants that gladly carry garbage, shit and rotten food, didn’t think I was worth the energy. Crazy right? Who scolds ants for NOT biting? Me, the crazy girl sitting on a grave stone, crying about everything and nothing. 

My emotions have gotten more extreme in recent years. Sure I could blame it on any number of things. Justifying is easy when you want clean hands. A new marriage, a new home, exhaustion at times, hell maybe half the time I’m just Hangry (anger caused by hunger) and need to eat. But every time my emotions go off on a spree, I feel out of control. I feel them, I hear them in my voice, I see them in my face and as many times as I’ve tried to find the off switch, there isn’t one. I have the logic to take with me on these destructive benders, but logic falls short as an antidote. There was a time when these fits of rage were short lived, when I could break away from that angry armor and return to a more normal state. I could forgive, at least I think I once could, and move on without carrying behind me the heavy baggage. Now I feel chained to the anger, bound by resentment and buried under an unyielding aggression without a way out. I do eventually come out of these dark moments but they seem to take longer and longer to subside, and I’m certain they arise much more quickly and with increasing force. 

There is something else. 

A skeleton that I keep locked in a small dark room at the back of my mind. I hesitate to unlock that door. I hide the skeleton there, but the skeleton is not of my own creation. If I left it out in the open it would become an obstacle in my daily life. I would trip over it often, it would remain in view nearly at all times and in its intrusive way, it would incite waves of alternating rage and pity. Justification is easy. So I keep the door locked. 

For the sake of being thorough in my analysis, I have to unlock the door. Welcome to daylight Mr. Skeleton, or as I call him, dad. 
My dad is the middle child of my grandparents. The last living son of three. I believe he is 55 years old as I write this. I’ve seen him less than a hand full of times in the past 2 years. Is he crazy? Am I?

Craig, my dad, is an addict. I choose not to use the word “recovered” because factually I have not seen that to be true. Someone recently gave me the expression “dry drunk”, to describe someone who has quit drinking but is not recovered from the addiction. My dad is a dry drunk. On the scale of things alcohol would be at the bottom of the list. This list being the list of all things Craig has used to slowly kill himself. At this point I also choose not to speculate what other drugs belong on that list, simply because I am not a trained toxicologist. 

I think the best way to approach this skeleton topic is actually to talk about myself. 

I have inhaled the aroma of alcohol that seeped from his skin, his breath even his clothes. I have seen the blood shot eyes that resulted from draining a bottle of Skull Vodka by 10 am. I have found and disposed of what appeared to be crack rocks, but that could have been crystal meth, what do I know? I have seen the bulging red lumps of a vein protruding from his arm as he emerged with a “friend” from the tire shop bathroom where we both worked. I have watched as his eyes glossed over, his lids drooped, his speech slurred and his balance faltered. I have watched as he attempted the simple task of walking, as if it was his first time on two legs. I’ve seen his knees buckle as he leaned down to inspect a truck tire, the side of his face slamming against the hood of the truck on his way to the ground. I watched as he picked himself up, spoke in incoherent language and stumbled back into the shop. I faced the denial he relied so heavily on anytime someone accused him of being inebriated. I absorbed and deflected the condescending remarks of a stoned father to his ignorant daughter when money came up missing at closing time. I felt the shame of his behavior when all eyes scanned over to me, no doubt wondering if I was blind to his state of mind. I hid bottles of vodka, flushed pills that I found around the shop. I watched my daughter intentionally avoid him every day when she walked from the school bus into the shop. I tried to drown out his rants when he misplaced telephones, tools and drugs and angrily searched for them, all the while accusing everyone else of hiding them. Sometimes I watched in resigned amusement as he swept the carpet with drunken determination. I tried to talk him down when he insisted on blowing the leaves off the shop’s metal awning with a leaf blower, extension cord, ladder and frustration. Even as customers lined up waiting to be served, he fought an imaginary war with the breeze, the leaves and some unruly acorns. It was me who began to lose patience. It was me who decided that this had to be stopped. It was me who contacted police about a man driving under the influence. Then, I felt the fear of his fury aimed at me, when my actions led to his arrest. And finally, it was me who packed up the lives of my three children and myself and moved, defeated, furious and exhausted, 2 hours away. It was me who left it all behind, threw this skeleton into a small dark closet and locked the door. 

So, now when I think of my emotions, about how they seem to grow, seethe and relinquish all of their own power, is it any wonder why I doubt the existence of my own sanity. Would it be sane of me not to wonder? In all that I have said, is there an answer for me? Maybe not today. Maybe by the time I get my answer it will come from some black and white newspaper ad chronicling my life story like one of those News report specials, but probably not. More likely I will spend the next 30 years of my life closely monitoring my own actions and feelings always checking them against my blood line, in search of the crazy mile markers. I hope that I never find any truly telling signs, that I too am part of the gene pool epidemic, but who knows. Until then, this is me. I think I’m at least a little crazy. And maybe that’s what keeps me sane. 

The Weight Of Us

 

 

We set them apart like diamonds among rocks,

without all the shine

We recycle our dreams into them

like the eager pouring of old wine

A world full of lukewarm enthusiasts.

Achieving without the work

Loving without the hurt

Believers without a cross to carry

Hope without the fear it marries

Entitled and undeserving with a bravery that’s unnerving

We gave them what we had and what we didn’t

We expected it to make them better versions of who we should have been.

They are the remnants of us, bits and pieces of our lust

Gathered together

Desperately tethered

Wearing the mark of our failings and honors

Fighting to balance the past and the future

With us on their shoulders

 

A Beating A Day, Keeps Disablility Away

DO you find this title offensive? Good! It is.

How many of us with ADD/ADHD kids have left a conversation soaked in the vomit of horrible parenting advice?

What he REALLY needs is a few welts with a leather belt, that’ll straighten him up

I would NEVER let my child act that way

He OBVIOUSLY needs more discipline

.thCALGOH5F                   thCALEP8HD                     thCAT5PX5K

This foul upchuck has decorated my perfectly lovely attire on more occasions that I can count, leaving its putrid scent on every part of my conscious. Well-meaning advice- as it is commonly called- is nothing more than an offensive barrage of insults aimed like a sniper rifle, at the parent; me.

In its simplest form, I call it ignorance. Webster defines Ignorance asa lack of knowledge, understanding, or education: the state of being ignorant”

                                                                                                                              thCAE40BTG

Ask yourself the following questions:

  1. If you are a janitor, do you give your surgeon lessons before undergoing an operation?
  2. If you are a dentist, do you tell the mechanic how to repair your car when it breaks down?
  3. If you are a stay home mom, would you show up on a construction site and make suggestions on the proper wood to use or how to lay a slab?

Chances are the answer is no. When you are not experienced in something, you are ignorant. I am not an Oncologist, I cannot treat a cancer patient. I am ignorant.

So why is it, that it seems perfectly acceptable for ignorant people, with otherwise decent intentions, to do exactly that; to storm parents with destructive criticism in the form of advice? The short answer:      IT IS NOT!

As a parent we are perfectly within our rights to deny, revoke and rebuke these kids of destructive, forcible suggestions! It has taken me 7 years to get to this realization, and I owe my son an apology for every time I blindly followed this kind of horrid advice, and he paid the price for it.thCAS37RRM

I’ve swallowed the rotten words of people who aggressively tried to coerce me into believing that my son needed more extreme discipline, harsher punishments and stronger limits. These types of advice act like an ice pick, gouging out chunks of the parent’s spirit, self-esteem, confidence and hope. How dare they!? Now of course I am not speaking out against discipline, structure, routine or punishments, these things are crucial for children. What I am speaking against is the overuse of harsh discipline as a “fix” for children with disabilities. In the same way you would never expect a spanking to cure someone with autism, it is no more effective in “fixing” a child with ADD/ADHD. These children need our HELP not our RATH! They are struggling just as we are, to understand themselves, to hold onto their self image in a world tearing it apart day after day, and they WANT to be good. ADD/ADHD minds work fast, and are wired uniquely, they need unique techniques to thrive. The discipline tactics used in history may not have all been flawed, but in today’s society I see an enormous increase in alarming adult behaviors that may have stemmed from the parenting choices they were subjected to. Consider the number of adults who habitually  resort to anger, bullying, hostility and fighting as a response to stressful situations? My guess is these adults came from homes where the main sources of discipline were fear and intimidation. I dont want that passed down to my children. I want their moral compass to come from within themselves not forced upon them by outside forces of fear and anger masquerading as “respect.” I want better! Dont you?

The expression “stay in your lane” never seemed more appropriate than in this context. If you are heavy under the weight of advice that does NOT come from someone experienced in raising a child with ADD/ADHD, or a place of positive encouragement, YOU DO NOT have to accept the offered advice.

It takes some time to build up the defenses we need, the heart of advocacy for our children, and the confidence to use the voice we have, but we must not relent!

If you are bombarded with advice that your gut tells you is wrong for your child, it is OK to stand against it!

You are a capable and wise parent! You are amazing! Did you forget? You have been equipped to raise the children gifted to you! It may not feel that way often, but the truth and the moment are not the same. The moment says “I can’t do this, I have failed, fallen short and feel incapable” but the truth says “I will find a way, I will keep pushing and I will succeed”.